PatientsLikeMe Project Pioneers Use of Outcomes Data That Are Meaningful To Patients

February 27, 2013

Robert Wood Johnson Foundation | Feb 25, 2013,  RWJF has awarded PatientsLikeMe a $1.9 million grant to create the world’s first open-participation research platform to develop patient-centered health outcomes. The new platform will be linked with the PatientsLikeMe network to help researchers develop health outcome measures that better reflect patients’ experiences with a disease, and assess health and quality of life in ways that matter to patients. 
In this blog post, Jamie Heywood, co-founder of PatientsLikeMe, and Paul Tarini, senior program officer of the Pioneer Team at RWJF, share their views on why creating an open-access platform to develop measures that matter to patients could advance meaningful treatments that improve health and advance research.  Read more

Leave a Reply

Your email address will not be published. Required fields are marked *


*